International Network on Ectopic Calcification
News
PXE Patiëntenmeeting 2024 in Gent
Op 15 mei 2024 organiseert het PXE Referentiecentrum Gent een nieuwe meeting voor PXE patiënten. Tijdens deze meeting zal ingegaan worden op nieuwe bevindingen en mogelijkheden van behandeling voor PXE. Daarnaast voorzien we ook voldoende tijd voor vragen en voor ontmoetingen en interactie tussen patiënten. Deelname is gratis, maar inschrijving is aangewezen!
Raise awareness for ectopic calcification on Rare Disease Day
February 29th marks the 2024 Rare Disease Day. We want to raise awareness for the many patients out there with a rare ectopic calcification disorder, and reinforce our intentions to improve their management and treatment. SHARE YOUR COLOURS!
INTEC will be presented at the COST Academy
The COST Academy face-to-face Sustainability of COST Actions Networking Event will focus on Action continuation through different formats than the more common Action follow-ups and highlight successful continuations of COST
ERN-Skin webinar on PXE and related diseases
On November 28th (1 PM CET), INTEC Members Olivier Vanakker (Ghent University, Belgium) and Ludovic Martin (Angers University, France) are giving a webinar on PXE and PXE-related diseases for ERN-Skin. Registration for this webinar can be done on the ERN-Skin website.
Lukas Nollet is our first INTEC PhD
On September 25th, Lukas Nollet from Ghent University has successfully defended his doctoral thesis on the pathogenesis and treatment of ectopic calcification diseases. Congratulations to Lukas from all of us at INTEC!
Join the seminar on calcification treatment by Yvonne Nitschke
Follow this fascinating seminar by dr. Yvonne Nitschke on September 25th (15h00 CET) via livestream. Click to find the link for the free registration.
Upcoming meetings & events
Gent, 9000 Belgium
Het is met groot genoegen dat we u uitnodigen voor de eerstvolgende pseudoxanthoma elasticum (PXE) patiëntenmeeting die zal plaatsvinden op woensdag 15 mei in de Rode Bol Gent. Tijdens deze bijeenkomst […]
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